March 08, 2006 at 02:20 PM EST

March 08, 2006 at 02:20 PM EST
Well with the good we know comes the bad. Today is a very quiet day in the sense that Simon is sleeping alot. His platelets are very low today and he is going to be getting a blood transfusion this afternoon to boost them (which is common in transplant - doesn't make the mom feel better though). He is not able to keep anything down even his meds he threw up this morning. He is pasty white and very tired. They are starting very slow continuous feeds again today in the hope that his gi system will start working better as he is losing weight again and we need to try and get him going in that area again. He is a strong little boy (much stronger than his mom is at times) and we think he will be okay. Go Simmy.

The girls are missing me and the routine of family life offered them before all this craziness and Isabel is showing some definate signs of sadness and irritability because of it. Since we have noone to watch the girls this week Dave is having to stay home to watch them and that always affects us. Even though we have insurance we are still responsible for some of it and with a $300,000 + bill already we owe more than I thought we would. So its a balance of which thing to worry about more (or less if you can). Most importantly is Simons health. While the insurance is suppose to be paying for Simons care, Marrianas donation is not definately being covered (which in the law of donations doesn't make any sense to us)so down the road we will see. It scares me to think he could go through his lifetime max benefits in a few hospital visits and he is only 6 months old.

If you are still with us, please continue to pray for Simon that he can be strong and perservere and Dave and I can be strong in holding our family together emotionally and physically. Thank you all. Take care, Tracy and David