Day +12

Today is just a waiting day. Simons counts are up and down everyday and we are waiting for a good white count to come in. He is having complications with things everyday and they are being addressed by the doctors as they come up. Unfortunately he has had some of his angry skin issues return and there are still no answers as to what exactly is going on with his skin. Is it graft vs. host disease or is it part of the ED from his disease? Noone can answer that. We are at week 7 of being in the hospital and its starting to take its toll on all of us. The girls cry when I leave to come here b/c they know I will not be home for days. I made them a tape of stories, jokes and songs and they really enjoy that. We also have a paper chain so they know when they will be seeing me again. Its hard. They cry in the morning when Dave leaves for work and ask him to stay home. Its all hard on all of us and we have had some sad days. I pray in the days to come we can have Simon feeling better and get some good news on his counts and pray that the cells fighting are Marrianas and will continue to be hers. For now we wait. Please pray for Simon and for strength for my family. Thank you. God Bless