GUESTBOOK

GO SIMON!

I love the pictures!! I showed Simon to my boys and they think he's adorable too!! I am thinking of you often and just wanted to let you know that I admire your strength and your resolve to "do right" for Simon and for his darling sisters. You are a remerkable family and I have and will continue to enjoy taking care of the little man. I wish you all the best through this very trying time. I agree, GO SIMON!!

Tracy, Dave and Girls - I think and pray for you daily and trust God to give you strength and courage. My love to you all. Tammy

Our son, Jackson, also has the NEMO mutation, causing a primary immune deficiency and ED. Unfortunately, we don't have a match for a bone marrow transplant. I just want to you to know that you're not alone. There are other families that are praying for you and for Simon.

I'm convinced that the NEMO boys are special kids. They're tough! They have to be.

Our son, Jackson, also has the NEMO mutation, causing a primary immune deficiency and ED. Unfortunately, we don't have a match for a bone marrow transplant. I just want to you to know that you're not alone. There are other families that are praying for you and for Simon.

I'm convinced that the NEMO boys are special kids. They're tough! They have to be.

I am ANDY'S grandma You can be sure I will keep on praying.I have seeing the pictures and Simon is such a lovely boy, he remainds me of Andy at that age.Love to all the family.

Dear Simon-
I came by to see you the other day and held you for the first time since I met you in my clinic several months ago. You smiled and laughed, and it warmed my heart. I think about you and your family often. I look forward to getting to know each other as you grow up, and spending our time talking about fun things (like your school and your vacations). Hang in there buddy.
Dr. Mancini

Dearest Tracy, David, Isabel, Marriana and Simon, I am using my sister's computer to send our prayers and best wishes to all of you. I hope you feel our hugs from miles away and know that you are in our thoughts constantly. God bless all of you. Love, Joan & Jim

Simon just wishing you wealth and happiness...and since your too young to have any wealth lets go for good health...Cousin Ken

Tracy, Dave and the girls, I'm thinking of you all and hope that Simon is getting stronger. Many big hugs! Lisa

Dear Tracy, David, Simon, and "Girls",
I think of you so often, and Terri keeps me posted on all Simon's developments. You all are truly courageous and incredible inspirations. Know you continue to be in my thoughts and prayers.

I just wanted you to know you're in my prayers this morning. I miss all of you, but you're never far from my thoughts. Simon is so lucky to have a strong supportive family. Love, Alena

Hi everybody!! I hope all goes well we will be watching and praying for you, from us over the pond in the UK!!! cure4rhys xx

Simon--I am going to miss our weekly playdates while you are back at Children's! Stay out of trouble pal, and take good care of your mom. I will see you when you get home. We can chase Soph and the girls together!
Meg

Hey Simon!!!
God Bless!! Good Luck!!!
Our thoughts are with you from over the pond in Wales the UK....
Gonna be making plans to see all the NEMO Boys!! So you better be there to see Rhys,, defeat is not an option!!! Be Strong for you and your wonderful family!!
Kevin, Dawn Rhys and Morgan

Someone in NJ is praying for you!
God bless you and keep you.

TRACY,
PATTI IS ALWAYS UPDATING US ON SIMON. OUR PRAYERS ARE WITH YOU AND YOUR FAMILY.

TRACY, YOU HAVE TO BE THE STRONGEST PERSON I HAVE EVER MET.
I DONT KNOW IF I COULD BE THAT STRONG. GOD BLESS....

LOVE,
DIANE AND GEORGE

Hi everyone!!!
Just checking in from over here in the UK!! Glad to hear about his platelets that is a really good news!! Slowly but surely they will give him his own immune system!! We to make the preliminary steps this week for Rhys's Possible BMT but our thoughts are with you all!!!
Love Kevin, Dawn, Rhys and Morgan

Seasons Greetings,

I found Simon's webpage through cure4treebeard. I am friends with Jacob's Aunt and have been following his progress. My husband and I are currently here at Children's with our son, Owen too. Our son has a congenital heart defect and is recovering from surgery. We've been here for six weeks so we may have seen you around the hospital! Anyway- we'll be praying for Simon. I've enjoyed reading your blog and seeing the beautiful pictures of your little boy!
Take care -
Christina

Dear Simon and family,

My name is Kelly and my son, Samuel, was also diagnosed with NEMO in May 2006. You are in our thoughts and we continually pray for you that this "new" immune system will soon take hold. We also pray that your family will continue to endure these trials and that FAITH, HOPE AND LOVE will always prevail. A lot of people in New Mexico are behind you!!

Kelly Dunbar
Albuquerque, New Mexico

Hi Simon and Tracy,
Just checking in on you--we are praying for constant protection and that you will be surrounded by our Father's LOVING ARMS AND HEALING HANDS!
God Bless,
Kelly (Samuel's mom)
www.caringbridge.org/visit/samueldunbar

Dear Simon and Family, This is Rhys,s mum Dawn sending you much love and best wishes, Thinking of you all, Love Dawn

Hi Tracy, Simon and family,
I'm just trying to keep up with the progress of all the NEMO boys. It sounds like Simon is doing well and gaining weight. We hold Simon and your family in our prayers every day.
God Bless
Kelly Dunbar
www.caringbridge.org/visit/samueldunbar

Hi Simon,
Just dropping by to let you know we are thinking about you today. We lift up you and your family in our prayers and hope you will be feeling 100% very soon.
God Bless,
Kelly Dunbar
www.caringbridge.org/visit/samueldunbar

Hi Tracy and David,
I just wanted you know we are constantly praying for Simon's numbers to climb and for his graft to hold.

God Bless Your Family,
Kelly Dunbar
Samuel's mom

Go Simon!! Get that 3% out of there Buddy!!!
Kevin, Dawn, Rhys and Morgan

Hi Tracy,
Thanks for sending me an email. Sounds like you all had a great time at the IDF Conference--wish we could have been there...maybe in 2 years we can all meet up in Florida. Please send me your email address again..it didn't save in my address book for some reason. Hope all is well with your family.
Blessings,
Kelly Dunbar

Hi Guys,

Thinking of you today and praying constantly for Simon's numbers to be up and stay up. Also praying that Simon does very well with IVIG and that the doctors have good news all around.
Much Love,
Kelly Dunbar

Dear Simon,

Just wanting to wish you a very Happy Birthday today. I hope you are enjoying every minute of it---please eat lots and lots for us!

Much love,
Kelly Dunbar
www.caringbridge.org/visit/samueldunbar