February 25, 2006 at 03:50 PM EST

February 25, 2006 at 03:50 PM EST
DAY SIX OF CHEMO AND DAY ONE OF GCFS FOR MARRIANA

Hello to all of you. I cannot express how touched we are by all the thoughts and prayers we are receiving through this page. It means so very much and forgive us for not responding to each message. They all mean so much to us but time is not something we have right now and we don't know if we will ever be able to thank all of you for your prayers and thoughts. SO please know, it means so very much to us.

It is day 6 of Simons Chemo. He started another type of chemo today so he will get two infusions of different chemos today and this starts the stronger dose. They tell us he will be feeling the affects of it by monday or tuesday with vomiting and the like. Its not going to be an easy week. While all this goes on we are still managing to get him to smile or laugh through the very full and swollen checks that the steroids have given to him. So for that we are thankful. Its going to be a hard week with Marriana starting her GCFS cell growth stimulating shots today. I had to administer it to her today alone since dave is at the hospital. She was less than happy to make it easy on me. I do all I can not to cry along with her. They had to put a little port in her stomach for me to put the injections into so shes not getting poked but the medicine does burn as it goes in. Shes been a trooper but I know it all scares her. Wednesday is her big harvesting day and Thursday Simon will receive her cells. I know Wednesday starts lenten holiday so please pray extra hard for our children that this all works for us.

We appreciate you all our friends and family and I will update you as the days of this go on. IF you wish to be taken off the automatic mailing you can instruct the page that e mails you to do so. Also in addition please check out Simons webpage at Cure4Simon.org. It will have some additional info on NEMO/ED and simons treatment and doctors as we have time to post it. I'm waiting for pictures so I can load them. thanks again. Tracy and David